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Post by mommy007 on Sept 17, 2004 9:47:33 GMT -5
Well at the end of 5th grade we held a "transitional" meeting for middle school (6th grade). 18 school staff members from both schools were present. My DS who had been diagnosed with adhd for 5 years has been diagnosed with an autoimmune disorder. We tried every medication and only experienced severe side effects.
We have not had a current IEP, but on the first day of school my son meet Mrs. Smith, she told him she would be in every one of his classes to help him in any way.
Wow, I was impressed. It's not even written in his IEP.
I believe requesting all these fokes to the meeting got the attention needed! From the nurse, counselor, principals, teachers, learning support etc.
I think if you get many people involved they can't deny the needs.
I invited them all myself and requested them to attend.
So far the last two weeks have been good. But . . . we'll see if it continues.
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Post by rosyred45 on Sept 17, 2004 11:17:12 GMT -5
That's very good that it's going so well. Happy to hear it. Wish it was that way here, but we're getting there.
I like the idea of everyone sitting in on the meeting. I'm going to think about that one myself. Although I don't know about the nurse, since we don't medicate, BUT it wouldn't hurt.
Congrats so far!!!!
Best of luck for the rest of the year
Kaiti
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Post by AnneM on Sept 17, 2004 13:17:39 GMT -5
WELL DONE mommy007 ... your sheer determination and advocating for your son has DEFINITELY paid off !! ... I am sure that having someone to be there for him will really, really help ... I am soooo impressed with what they have put into place ... but in fact it is YOU who deserves the pat on the back ... without you it wouldn't have happened... GOOD FOR YOU!!  |
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Post by adhdtimes4 on Sept 17, 2004 23:48:57 GMT -5
Boy, that mass meeting sounds great! I would love to have done something like that a long time ago, but didn't have the guts! You're braver than I was, and I know it will pay off.
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Post by mommy007 on Sept 22, 2004 8:11:56 GMT -5
Thank you for the positive comments. The meeting was a bit overwhelming. It took 3 hours. I took a wonderful advocate with me, she was so on the ball. I presented documentation from A.I. Dupont hosp for children (neurologist) as well as information (email) I received from the NIH, that had some heads turning. I had folders full of information for all that attended, articles etc.
My son does not take stimulants anymore, with his condition they effect his central nervous system and cause him to tic more and stutter. We asked the nurse to attend because I wanted them all to have first had information.
Now instead of hearing the teachers say my son is not working to his potential, they are happy to see him keeping up - his first science poster assignment got him a "A" - he was one of a few who received this mark.
I figured the school overwhelmed me enough times, I went in as prepared as I could be.
I go to meet Ms. Smith next week - she seems very nice.
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Post by catseye on Sept 22, 2004 8:31:49 GMT -5
WOW ! You sound like you were really prepared! Great for you!
I remember the first time we had an IEP meeting, how overwhelming, and oh whats the word intimidating I guess, it was... All these people in there, and we didnt have a clue what was going on at the time... It also took 3 hours and had to be retabled (or something like that) since we were so blind sided we needed time to absorb and accept the issues...
Congrats on the "A"!!!
cat
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Post by mommy007 on Sept 29, 2004 13:28:14 GMT -5
Well, we meet Ms. Smith - and all my sons teachers, we went over the new IEP and are working on it now.
His teachers were great, very together. I "drove home" the fact that my son has never had "positive" feedback.
They are currently pleased with him and want to slowly bring him along.
The teachers decided when they meet, as they do weekly to discuss the kids, they are going to invite my son just to tell him what a good job he is doing!
My son needs to keep his hands busy, with a ball or something, they will accomadate, when he does not use it, they will complement him! It all sounds very positive.
He actually likes school, he tells me what he did in class, without me asking - it's a first!
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Post by camismom on Sept 29, 2004 14:44:59 GMT -5
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Post by finnmom on Sept 29, 2004 14:54:30 GMT -5
Great Mommy007  Way to go, you did a great job. It´s a nice thank you for you to hear your ds telling thing´s from school. Your meeting sound´s really great ( must have been overwhelming to have all those people there, but you made it  That´s the way to handle these thing´s with our kid´s, they need some special thing´s, when they get those, they´ll be fine Keep on the good work!! |
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Post by rosyred45 on Oct 1, 2004 11:34:49 GMT -5
Just wondering, did you see Dr Susan Stein (or something like that)? That's who saw Mikey.
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Post by mommy007 on Oct 5, 2004 12:02:56 GMT -5
rosyred, We say Dr. Borkowski at Dupont. He did a complete history, read all the evaluations that had been completed throughout the years. We now only see Dr. B every 6 months. My DS gets his progress report thursday, he is doing great at this point. I just got word today that he nailed a science test - 20 vocab words - the words were complex - I would not have gotten 100 if I took it  I'm sure he can't wait to tell me. I received a call about his IEP, I have been editing it. Last years teachers make my DS sound like a defient/4th grade level student (he is in 6th grade now). No only did they add that the teachers tested him during a relasp of PANDAS, but she added his terra nova and PSSA grades which were all fine. His current math/Language arts teacher also wrote that James is completing his work very well at this time. I have not felt this good in 6 years about school. I just hope it continues. |
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Post by rosyred45 on Oct 5, 2004 12:47:19 GMT -5
((((((((((((well wishes))))))))))))))
I hope he keeps up the good work to. Be proud of yourself, it's paying off.
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