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Post by catatonic on Jan 11, 2004 9:49:19 GMT -5
I think we're all in a very, very difficult position. Do we use medications that won't actually cure anything but will make the symptoms controllable, as long as we're willing to risk potentially awful side effects? Do we use more natural methods that are largely experimental, may or may not do any good, and require huge time and energy commitments from us? Is it better or worse to have a child who develops tics or one who continues to struggle in school because of lack of attentiveness?
I occasionally suffer bouts of uncertainty where I feel like I'm prolonging my son's suffering by avoiding use of medications. Or, as our school's counselor says, "denying him the medicine he needs". (Believe it or not, I didn't deck her when she said that to me last year. If she said it now, I probably couldn't control myself.) These moments usually come when he is reacting to something and his behavior is particularly awful.
And I'm one of the lucky ones, in so many ways. For one thing, although my boy's response hasn't been perfect, he's responded extremely well to diet changes and supplements. Well enough that at most times I don't even feel medication is necessary (although it might make things easier at school.)
For another thing, he "just" has ADHD. There are no comorbids. And despite being frequently obnoxious, he remains a basically good kid - affectionate, motivated to succeed in school, desiring of approval. He doesn't fight, steal, etc.
I know many parents face far worse challenges than I'm dealing with and have been forced to recognize that their children don't "just" have ADHD, but possibly other more severe psychological disorders as well. I ask myself frequently whether I would retain my strong commitment to avoiding psychoactive medications were my boy to be diagnosed, for example, with schizophrenia.
Anyway, what prompted all this rambling was OhMama's simple comment, "My boy needs help." If only the answer were as straightforward as the problem. If a straightforward answer existed, I guarantee OhMama would have found it by now, because she is smart, thorough and persistent. What we're dealing with isn't straightforward, like a cut to stitch up or a tumor to remove. It's amazingly complex, frustrating, overwhelming, discouraging... but we keep trying.
And at the end of the day, we may have to acknowledge that we made mistakes, but everything we're doing, we're doing out of love for our children. And in the long run, I truly believe that our love will have a far more enduring impact on them than our mistakes.
There was supposed to be a point in here somewhere, but I seem to have lost track of it. So hang in there, OhMama. I'm sure whatever decision you make, it will be an informed one with your boy's best interests at heart.
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Post by AustinsMom on Jan 11, 2004 14:22:47 GMT -5
Ohmama and catatonic: Just jumping in to say how much your postings above resonate with me and my situation. Sometimes I feel like I'm trying to solve a jigsaw puzzle in the dark and searching frantically for a source of light. My experience with meds has made me very wary of medications. Yet I know I have to do something...my sons behavior is frustrating but seeing him struggle with a pretty significant language learning disability just breaks my heart. His competitive nature and his strong sense of self (which thankfully is pinned on a large ego that hasn't taken too much of a pounding yet) means that he confronts this issue by avoiding everything he can, and resolutely maintaining that he can do whatever it is he's currently struggling with. So we argue about homework and remediation activities ad nauseum.
I often think how much easier this would be if I just had ONE thing..LD or ADHD. But no, we have to have SI problems, visual perception issues, perceptual motor problems, visual issues, etc. It's the worst of luck to have a learning disability and not have the attention or cooperation to work on remediation. And all of those things are treatable if I just could have COOPERATION.
So like you, I am looking under every rock for an alternative solution. And the hardest thing is how subjective it is. I'll add something and think it seems better, then it seems worse again and I can't figure out if it's because the initial improvement wasn't attributed to that, or if he is getting a cold, or did he not get enough sleep last night, or have we altered our schedule and he is not adjusting well, or has he eaten something...I just want something concrete and objective to hang my hat on; a yes this helps or no it doesn't written in stone. Or I find something I think is helpful then I read something that indicates there could be negative effects from it, and I'm left trying to weigh the benefits. Or my miracle thing works really well for weeks and then all of a sudden it seems to lose it's effectiveness. So I have nothing constructive to add to this thread, but am just joining you in a collective scream of frustration...
I am hopeful that I can find some quantitative info at Pfeiffer that will tell me specific numbers on lipids, metals, amino acids, histamine, etc. Am also hoping to find someone to help me put all these pieces together and look not at just each piece but how they all effect each other....to shed a little light on my jigsaw puzzle to go back to my early metaphor. Thanks for letting me hijack your thread for a much needed vent.
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Post by ohmama on Jan 11, 2004 20:15:13 GMT -5
Susan the mom, Thanks for the information. It doesn't surprise me to see Risperdol on trial. I hope you will keep us informed as to what happens with all that.
Cat and Austins mom, I know you are both aware of the frustration I'm dealing with. Your words mean a lot to me because I know our pain is the same. If there is an answer to these afflictions we are dealing with I am convinced it will come from a parent with a child like ours who did not give up and just go along with the poor medical treatment that is available now. I hope Pfeiffer can give you some relief Austins mom. Please share your success with us when you get back. Think positive, this is a good move.
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Post by susanthemom on Jan 12, 2004 0:33:53 GMT -5
Will do, ohmama. And I hope you have some luck w/ whatever you choose for your boys. Finding a med that you have confidence in can be a very daunting task.
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Post by Kimmers on Jan 13, 2004 12:56:52 GMT -5
Don't mean to butt in either but I just wanted to say I am glad that I am not the only one who is so frustrated with things working then not working then trying this and trying that. I love my boy so much that it hurts to see him act the way he does. The loving, caring little boy he used to be is buried so deep now and masked by his opposition, hyperactivity, bad attitude, poor self-esteem, etc. etc. that I find myself crying and throwing my hands in the air at least once a week and then wiping my tears and mustering up the strength and courage to keep going and to keep searching for an answer that works for us. It is just so dang hard...I find myself constantly asking my close friends what they would do in my situation and they all say, "I'd put him on meds." and then somehow I have to find that place in my heart that tells me what I am trying to do with him is the right thing to do. Somedays I just imagine what it would be like to have a normal life without the ADHD in our lives and it seems so wonderful and then I get a day like yesterday where I pick my son up from school and the first thing he does is take my hand and look up at me and ask me "Mom did you miss me today?" and then I just melt and blame myself for being this horrible mother who would actually consider a life without my son just the way he is. Anyway, I am also rambling and making alot of nonsense but I guess I just wanted a chance to vent my feelings as well. Thanks for listening and being there to address all of the concerns and sometimes silly questions I have!
Kimmers
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Post by ohmama on Jan 13, 2004 19:57:31 GMT -5
Kimmers, I know what you are saying. Some days are better than others. Those are the days I wait for, sometimes a long wait. I know we all understand and try to imagine what it is like for our kids. In my opinion it takes a good nutritional program for us parents to keep from falling apart. It's easy to forget yourself but we have to be aware of this and take our vitamins too. It helps, we need all the help we can get. I find when I am regular with my omega 3 and vitamins, and a lot of prayer... I can conquer the world (most of the time).
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Post by Kimmers on Jan 14, 2004 12:48:13 GMT -5
I guess the most frustrating part so far has been the fact that when we first started all of the naturals, they worked SO well. I was completely amazed at how he had transformed. And then it started to go downhill again. It was almost like God was teasing me by showing me how wonderful things COULD be then taking it away again. LOL Sometimes that is how I feel...that this is somehow a punishment from God! And I definitely know what you mean Ohmama, about taking care of ourselves too. Strange thing is that now that I am giving all of these things to my son, I have started taking them myself. (Figured I better set a good example!) It is true that when we are not taking care of our own bodies and minds, that our kids definitely suffer the consequences. I know that when I don't take my Zoloft I get cranky and yell over nothing! Anyway, it is definitely a roller coaster with the ups and downs we get!
Kimmers
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Post by ohmama on Jan 14, 2004 14:32:30 GMT -5
Kimmers, If I don't take my St.John's Wort everyone in the house pays for it. Ha Ha pay back time!
The only thing I know for sure is that God is not punishing us or teasing us, or tormenting our children, he is not giving us this. All these things do not originate with him. I don't know anything else but I know this.
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Post by Kimmers on Jan 14, 2004 15:19:51 GMT -5
I am glad you feel this is not a punishment-it makes me feel better! And I never thought of my crankiness from not taking my Zoloft as pay back...I'll have to remember that next time! Seriously though, it is very hard not to take the blame and fill yourself full of guilt for the way our kids are. I have to tell myself every single day that it is not anything I could have prevented. Kimmers
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