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Post by Brenda on Jul 6, 2004 9:28:45 GMT -5
I think my daughter has sensory problems.She is always chewing on her hair or twirling it.She chews on paper,toys,erasers,clothes,etc.I mean all the time. She also loves to jump on the couch and do flips.She loves swinging and jumping. She loves to touch things,especially feathers.When we go shopping she has to touch everything. She gets very excited when we go to visit friends and relatives. She also has never slept all night and she is 6 years old now.She wakes up every 2 hours.If we let her sleep with us she will sleep all night.She loves for someone to snuggle with her. She can spot an airplane in the sky that we can't even see. She has to have the TV real loud.One time Brandon started screaming in the car and she covered her ears and started crying. When she was just 2 she would not even cry when she got a shot.I remember when she had to have blood drawn from a vein when she was 3 and she did not even cry.My SIL told me that that sounded like a sensory problem then. How do you get Sensory problems diagnosed?Can I call the hospital or do I have to go through the school system? |
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Post by songwriter on Jul 6, 2004 10:20:23 GMT -5
We are going to a psychiatrist,(found her in the back of one of Dr. Amen's books), where d.s. is being diagnosed as ADHD/Sensory Intigration Dysfunction/with Learning Disabilities.
It is very expensive and we dont have insurance so we are paying out of our pocket.(I think it will cost us thousands but his case is individual and we need a correct dx.)
I think you are right in suspecting S.I.dysfunction in your daughters case. I am reading "The Out of Sync Child" and so much of what you said is addressed in the book (Get the book if you don't already have it)
We are gearing up (with the psych. help) to asking the school for special accomidations for our son.(He has been homeschooled up to this point but d.w. wants to put him in public school as she is burnt out on teaching him) He is 13.
Paul
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Post by Brenda on Jul 6, 2004 10:26:12 GMT -5
Thanks Paul.I have the book reserved at the library and it should be in in a few days.I think she does have ADHD but sensory problems too.Adderall Xr is helping her but she still has issues that look like SID.
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Post by finnmom on Jul 6, 2004 11:38:54 GMT -5
Brenda As far as I know; sensory problem´s are very common with adhd-kid´s. I know my ds8 has some SI problem´s, he get´s occupational therapy adressed mostly on SID and for some motoric problem´s too. Ds has the same problem w/ loud noice´s, as long as he isnt the one making the noice ;D He slapp´s his hand on ear´s when thing´s get too loud. I can see so many characteristic´s you described on my ds. Our psych. wrote SID on his dx I´am not so sure how you can get it evalued  Sorry, no help, just want to say; go for it, it help´s on the long run to get this adressed as well. |
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Post by rosyred45 on Jul 6, 2004 19:19:33 GMT -5
Now here's a whole can of worms that I didn't think I would worry about, but you are discribing Mikey now.
I remember hearing somewhere (not sure where or when) that alot of the oral fixation was because the kid was not sucking enough as an infant. Whether it be from a bottle, nursing, pacifier, thumb, whatever.
It was supposedly something that was pyscologically attributed to that specific act.
I don't know how much of that to believe, but I do think it's kinda off, just a bit.
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Post by Brenda on Jul 6, 2004 21:57:31 GMT -5
Stephanie was weaned from a bottle at 10 months....But she sucked her pacifier until she was 2.The chewing is really starting to bother me.She puts really dirty stuff in her mouth.  |
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Post by Honeysmom on Jul 16, 2004 16:38:56 GMT -5
I never realized how many sensory problems Honey had until he saw the doc last week. I got so used to thinking he was just particular that I really didn't see a lot of stuff.
As far as the thumb sucking goes, that is a bunch of hog wash, IMHO. Oral fixations are habits and a way of relieving stress. Why does a baby suck his thumb? To calm himself down. Why do adults (and lots of kids) bite their nails? To calm down. Why do some of us smoke? Same reason, and if we can't smoke we chew gum, eat, or bite our nails.
It is a way to relieve stress and anxiety. Usually it is harmless (smoking excluded, unless you are in the path of a smoker who needs to smoke) and will not result in bad consequences. Of course, a 10 y/o probably shouldn't suck thier thumb at a sleep over to spare themselves a little ridicule from friends.
Many of the sensory issues we are exploring the psychritrist pointed out to me. We also had to pay for her out of pocket and it is not cheap. But if you can swing it, it is worth looking into.
Honey does the exact same things you described, except getting excited to see relatives. Oh, how I wish I could have my own bed back!!!
Becky
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Post by Mishamom on Jul 21, 2004 8:49:12 GMT -5
Brenda, to have your child evaluated for SID (which my daughter has also) ask your pediatrician or psychologist/psychiatrist to give you a referral for an Occupational Therapy evaluation. Then choose/find a rehabilitation center that works well with children. They will do an OT evaluation designed to determine if SID is a diagnosis. If that is they case they will also design an OT program that can have a great impact on both sensory issues and motor skills (which usually lag behind due to SID). THere are also newer treatments out that we're having great success with here that we feel are well on their way to resolving the problem all together. I wrote about that in detail in the Medications section.
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Post by AnneM on Aug 3, 2004 11:17:38 GMT -5
Wow!! I am learning here because I (ignorantly!) thought that Sensory issues were based on feeling extremely irritated by things like labels on collars, seams in socks etc.etc. I honestly didn't realise that actively 'wanting to touch things' indicated any sort of sensory issue.... I also personally agree with Honeysmom that as far as thumb sucking is concerned this is just NOT an adhd thing .... this is a very common childhood thing - adhd or not ... and as Honeysmom says is simply a means of a child calming him/herself down (a comfort factor)... nail biting as well is in my experience rife amongst the non-adhd population as well and is not an adhd thing... But as for some of the other things ... hmmm .... Mishamom has given some really good advice on getting it diagnosed! ...  GOOD LUCK BRENDA ... please keep us posted! |
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Post by Brenda on Aug 3, 2004 14:24:34 GMT -5
Yes Anne,I thought the same thing.I thought you had to be bothered by touch not crave touch.It is funny that you posted today.She had her appt today and she was diagnosed with SI Dysfunction.She went in the room and started picking up all the squishy and fidget toys.They said her mouthing inedible objects,touching everything,unaware of pain,jumping,always on the go,were all sensory issues.I'm wondering if maybe that is why we are still searching for the "right" med for her ADHD.She has been on Concerta,Adderall,Ritalin LA,Strattera.Nothing helped her enough or caused tics.The tics that they caused could really be her sensory problems getting worse from the meds.She would twist her hair,flick it out of her eyes,pull at her clothes,smell her fingers,chew.Her ADHD dr said they were all tics.She is on Tenex and Strattera now and still smelling her fingers and pulling at her panties.Sounds like the stimulants brought out the SI Dysfunction to me.The OT said that maybe after we get her in therapy she won't need ADHD Meds.That would be wonderful.  |
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sportsmom
Member Emeritus
What lies behind us and what lies before us are tiny matters compared to what lies within us.
Posts: 1,171
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Post by sportsmom on Aug 3, 2004 19:21:23 GMT -5
Brenda, Good luck to you with this new diagnosis ;D. I hope everything works out for you and your daughter. It sure does sound like you are on the right track  |
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Post by AnneM on Aug 4, 2004 11:21:09 GMT -5
Brenda ... as Sportsmom says GOOD LUCK !! ... and THANKYOU for helping me to realise that there is a whole lot more to SID than being irritated by certain things touching you! ... As you said yourself it would be wonderful if therapy could mean the meds were no longer required! ... Please keep us posted Brenda .... |
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Post by rosyred45 on Aug 6, 2004 6:56:40 GMT -5
Good Luck Brenda, jeez, from what you wrote, I could ramble off some kids that do all of that ::)Of course I see myself doing some of it too.  I hope everything fairs well with you all |
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Post by sweety on Aug 6, 2004 9:13:51 GMT -5
Rose has always had problems with sensory things. Her main problem is sounds. I have actually told movie managers to turn down the sound in the movies.Some sounds really annoy her. When it comes to touch, she is always caring something around in her hand, has hair brushing problems and has to have socks that fit just right. She is fussy about tags on her clothes. The daycare called me at work once and asked me if they could cut a lable out of her shirt because it was bothering her so much. My grandfather and my nephew were very fussy about their socks. The seams had to be in just the right spot if they had seams at all. I think sensory issues go along with all of this. |
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reg
Member
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Post by reg on Aug 6, 2004 9:50:10 GMT -5
My 11 year old is also VERY fussy about how his socks go on. He has to get them just right and some mornings it takes forever. He actually shudders when he brushes his teeth. I have tried every flavor of toothpaste. I have to MAKE him brush his teeth. I spoke to the dentist about it, he said that even if he brushed with just a wet toothbrush it would be O.K. But I have noticed even then he still shudders. Both of my boys have ADHD, both are VERY finicky eaters. My oldest will not eat ANY vegatables at all and very few fruits. He is 16 and could live on very rare steaks if I would let him. He said he craves red meat. My youngest will eat a few vegatables and fruits. I was just wondering if the finicky eating habits could be part of this. I have alway noticed that my oldest seems to want to chew on things like pen caps or other plastic things. He has done this for years. Clothing labels and seams, and certain fabrics have always bothered both my boys.
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