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Post by ohmama on Mar 15, 2004 12:34:31 GMT -5
dfp,
Thank you for posting that very interesting website. I think the more information we can read on this disorder the better. At least it makes me feel like I'm not alone. Not that misery loves company but rather that many people understand and sympathize with what we are going through.
I think the comment on low blood sugar makes sense. Hypoglycemia is so common that a high protein diet seems to be a must for our kids. That was my first thought when reading how he becomes more stable after eating.
I know how you feel and what you are going through. There does not seem to be any magic words to comfort us during the hard days but I know we both look forward to good ones. They are a treasure. They will come.
The fear of giving medication is very real but so is the fear of not giving it. I have found a kind of peace with this decision and will do whatever is needed. To do this with confidence that it is often necessary and you have tried everything, what else can you do?
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dfp
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Post by dfp on Mar 15, 2004 17:09:01 GMT -5
Ohmama,
Thank you for your kind words. I do know you've walked this sad path. And I know you've worried about the depakote and its side effects too. I hope you're still seeing good results. I do hear that Risperdal is very effective. I just want to exhaust all our other possibilities first. I was very lucky that when I left the psych a long-winded voicemail explaining all this he called back and was very supportive.
So we're taking it day by day. My son is sick with scarlet fever right now so we have some peace. But we'll see where we are when he gets better.
Take care,
Dfp
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Post by ohmama on Mar 15, 2004 23:08:56 GMT -5
dfp,
The depakote seems to be working? I don't know, it's so mild that I am surprised. No side effects. No tantrums or mood swings that I can tell. So, I guess that means he's stable now and it's working.
Scarlet fever sounds scary. I hope he gets over it soon and can stabilize You're right, it's one day at a time. There will always be something to worry about. Try to think positive. Imagine it getting better.
If you think you're going to panic, email me and I'll try to cheer you up.
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dfp
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Post by dfp on Mar 16, 2004 21:27:51 GMT -5
Ohmama,
Thanks so much. It's really nice to talk to someone who's been there. I have friends who are so well-meaning and kind, but they have no idea and it's so hard to share with them. And I do panic on a fairly regular basis! lol.
The scarlet fever sounds awful, but it's not what it was in my Dad's time. DS got it on Sunday and he'll probably go to school tomorrow or the next day. The wonder of antibiotics. He's just a little splotchy from the rash. When my Dad had it in 1932, he was in bed for a month and missed a couple of months of school. We count ourselves lucky.
Unfortunately, I could tell that ds was getting better because he wasn't all sweetness and light anymore and started speaking in growls to his brother. It was nice to have the peace of the past few days but back to reality.
It's VERY neat that the depakote seems to be working. And no side effects-- that's great. How does your son feel about that? And your other son? If I recall, he had some issues too? Are you thinking of depakote for him too?
Take care,
dfp
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Post by ohmama on Mar 17, 2004 0:44:34 GMT -5
dfp,
Thanks for asking. My other boy is taking natural alternatives that seem to be keeping his behavior under control. He is not affected as badly as my fire boy by the add/adhd so I don't think he will require any meds. At least that's how it is at this point. I hope it stays that way. There's nothing worse than the pain you feel when your child suffers from a mental disorder. I hate the helpless feeling that goes with this.
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dfp
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Post by dfp on Mar 17, 2004 10:11:59 GMT -5
I'm glad to hear your other boy's hanging in there. We are able to control my other son's moodiness/hyperactivity/tantrums with... PROTEIN. Even though my little one can really be a challenge (in a completely different way than my older adhd son), all the kid needs is protein for breakfast/lunch/dinner and limited sweets, and he's a doll. Then again, I've never looked in his eyes and saw that "look" that I see with my other son.
You are right about the pain. My older son nearly died at birth. He has a hearing loss that results from it and we have had to work for years with that, even moving from our home to another state to get the services he needs. All that has NOTHING on the sadness over his mental health, and believe me, I have grieved over his hearing loss too.
Oy, I can't even write about it. Gets me too worked up. I can only cross my fingers and hope.
Ok, off to my day. Hang in there.
dfp
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