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Post by hopeful on Feb 14, 2004 21:41:11 GMT -5
OK, here we go again....well, maybe not....
Why am I so scared of stims? Yes, we had a really bad 2 day experience with 5mgs of adderal xr. The metatdate cd will be like our 6th med trial, yet only our 2nd stimulant. My son hyper-focuses and as of late has trouble transitioning from a project (legos for example, but anything he's building). Is it because he hyper-focuses I'm so scared? Is it because he was spaced out, got a vocal tic and couldn't eat ANYTHING for 16 hours on just 5mgs of Adderal? The stimulating part of Wellbutrin really helped for awhile, then his body must of "learned" the medicine. So why am I so scared?
He has a full week off of school. I keep trying to ask myself, "But what if it DOES work" but my positive sounding question just doesn't feel sincere.
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Post by LitlBaa on Feb 14, 2004 21:48:12 GMT -5
Speaking from my own experience...I was scared because I didn't know what to do next. I'd tried everything else I could think to try, and I was putting my daughter through it all. If I could have been the guinea pig, I would have, but it doesn't work that way. I was scared because she was out of control without the meds, I was scared that they wouldn't work, I was scared that they would work too well, you name it, I was scared of it.
Fear of the unknown and untried is always the worst. It makes you feel so helpless.
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Post by finnmom on Feb 15, 2004 4:37:00 GMT -5
Hopefull  I´am sorry for your bad experience of stims/meds, I totally understand your fear! Sound´s terribel that you´ve tried all these med´s with no help  I, myself, was terrified about the thought of giving any med for my ds8, but this far (from mid dec.) he seems to be o´kay with concerta 18 mg. So I´am adjusting....  As said before me, the fear of unknown is the biggest fear of all. I hope you can think it trough and come to some conclusion for your child. Unfortunately it is a road of trying and failing Let us know how it goes. Marja |
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Post by Amsmom on Feb 15, 2004 14:34:26 GMT -5
Dear hopeful,
Being scared is completely normal. I doubt there's anyone on this site who hasn't felt that at least once (and probably even more, if they're anything like me).
My ds8 has had to go through so many med changes, I can't keep track anymore. Absolutely, as the other members have said, fear of the unknown can get to you. Honey, this too shall pass, and you and your ds will be feeling better. (((((((hugs)))))))
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Post by hopeful on Feb 15, 2004 15:26:40 GMT -5
Thanks for all the support. My conscience knows what I'm doing is right, I just feel terrible for my son that it's taken so long.
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lisle
Full Member
Posts: 142
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Post by lisle on Feb 15, 2004 19:21:16 GMT -5
Hi,
I know that feeling. You want things to go well, but you fear making it worse for him. I know I felt worried and guilty the whole time I was doing med trials. I tried not to let him know, but every time something bad happened (we had many side effects), he would get more and more sarcastic with me afterwards and I thought I was harming him. If we had found the right meds, I am sure this would have vanished and yet I gave up because he was so unwilling to try anymore. You can't help feeling you don't want to hurt your kid physically from meds just for something like his getting in trouble at school. I was unwilling to try some of the stronger drugs once the stims were ruled out for him because they are implicated in chronic diseases like diabetes and cholesterol problems or thyroid prob. However, I would try stims if I thought he could tolerate them as they are in and out of the system so fast and have been around for so long with so much research on them. If something happens, it usually does go away; did the tic go away when you stopped the med? I sometimes feel that we parents get post traumatic stress disorder from this whole process. We are the ones who feel out of control! But what if you DO hit on the one medicine that changes everything? Lots of people do, the majority in fact if it's just adhd. I say hang in there. We will all be thinking of you. Keep us informed.
lisle
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Post by Honeysmom on Feb 16, 2004 18:42:39 GMT -5
Don't you wish sometimes that you didn't get that motherly fear and guilt?? Just remember that you are trying to do your best for him. If it works out it will be totally worth it.
I understand your feelings about over-medicating him. That happened to Honey recently and I really felt bad. I know it was not intentional, but still, I made the decision to give it to him. Kind of like when you get into a car accident and are totally paranoid to drive or be a passanger for a while. This is a lot the same.
I have a full bottle of Adderall here for Honey and he has not had one. I could've restarted them 12 days ago, but I am a chicken. Pretty soon my patience will run out from all the hyperactivity and impulsiveness, but until then, I am resisting.
If you can get away with it give yourself and him a break. Then start over fresh. Good Luck, I hope you find something that you are comfortable with and works well.
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Post by hopeful on Feb 19, 2004 17:52:42 GMT -5
We tried the Metadate CD this morning. No difference, except his skin got red and flushed and he wasn't thisty all morning. Nothing else was any different. Hyperfocused, crabby, distracted. I HATE THIS. Can't wait to hear what the doctor says tomorrow at our appointment.
Our behavior mgnmt doc got me any appt with another doc that is listed in the Amen Book and usually has a 6 month wait. Plus, he isn't covered by our insurance. I get to meet with him next week to see if there is something I'm missing. The Behavior Mangement doc says in her experience, hard cases like our, parents have gone and gotten 2nd, 3rd and 4th opinions, gotten scans from the Amen Clinic, and still they come back to the doctor we are currently using. They are all local, and I understand that they are willing to work together, so I'm keeping my fingers crossed for something good to happen. I'm feeling pretty down right now.
We're at about as bad as it gets right now. We're back to where we were before medication. These behaviors are the same that brought us to seek help in the first place, only back then there was alot of family/school/house construction termoil that I thought was bringing it on. However, none of those things are true now. He has good friends, a supportive family including cousins, aunts and uncles and grandparents, good grades and a great teacher, not one that verbally abused him like before. If this is teaching me anything at all, it's that his diagnosis was correct, for sure, no doubt about it.
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Post by Honeysmom on Feb 19, 2004 21:17:25 GMT -5
I am sorry to hear that things are going to badly right now. I really hope that they start to look up. I know sometimes you go from doctor to doctor and get no where. Just remember we are all here anytime you want to vent. I hope you start to feel better and make some progress!!!
Good Luck...Becky
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