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Post by StrugglingAgain on Jul 27, 2005 19:49:26 GMT -5
Whew.....THAT was fun. NOT! We met with TWO female interns. I had filled out sixteen pages of questions from them and they went over almost every item with dh and I and made notes in the margins. The doctor supposedly met with ds, but he had been taken to another room while we went over the questions with the interns. DS said the doctor visited with him for about ten minutes. I'm not surprised since he won't talk to ANYONE who is trying to analyze him. We left there with MORE papers to fill out, mail back, and then they'll make an appointment for an evaluation. I sure hope this is all worth it. They said they are going to try to get it done before school starts......I'll believe that when I see it. Stay tuned.........................................
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Post by Linda on Jul 27, 2005 20:24:39 GMT -5
Ohhhh....My fingers are sooo crossed for you  Good Luck. |
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Post by finnmom on Jul 28, 2005 9:31:19 GMT -5
Oh no, doesn´t sound too good, but I´ll keep my fingers firmly grossed for this to be a succes |
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Post by camismom on Jul 28, 2005 14:06:54 GMT -5
Count me in on the fingers crossing! Keep us posted.
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Post by milesofsmiles on Jul 28, 2005 16:06:48 GMT -5
I always thought the appointments were for the child, not for how to fill out papers. It would have been a lot more productive to have sent the paperwork to you, and mailed back to them BEFORE the appt. It is not like it was the first time they ever had an appointment. Geesh!!  We have a medical history outline that we keep up to date. It explains all the meds he has been on, what the reactions were, all of the behaviors he had, etc. So when the Dr. begins to ask the usual questions, we can refer him to answer 'page 2 line 7B.' It blows them away usually. It is also a measure of how much Dr. preparation goes into seeing our son. I have to admit it is a bit of a power trip on my part, but we want the best for our kids. You have done the best you could with what you got. I hope the hospital is not too big to see the person they are trying to treat, rather than a just a patient. I can imagine you feel let down, expecting something but just getting more papers. I feel for you.  and my fingers are crossed too. Miles |
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Post by StrugglingAgain on Jul 28, 2005 19:57:05 GMT -5
Oh Miles, I think you're absolutely right. What the appointment was yesterday was to get another $260! We never even SAW the doctor, much less got to meet her. The hospital had already mailed me sixteen pages of things to fill out and they even said I'd filled them out in great detail. The papers they gave me yesterday are redundant. I spent hours and hours on the first set, but here we go again. I think the whole thing was to placate me....and to line their pockets a little more. I hope we end up with a correct diagnosis. I think I can handle it if I only know that the final dx is the right one. THEN I'll feel more like we're going in the right direction. Thanks, everyone, for all the well wishes.
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Post by Kaiti on Jul 28, 2005 21:51:27 GMT -5
Struggling, have you eliminated things from his diet? I don't wan to sound off, but we have tried reregulating Mikey's diet to normal.......it didn't work  We have noticed such a difference when we take out according to Feingold. I don't think it would hurt to look at that. It helps a bundle with Mikey Take care and good luck Kaiti |
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Post by StrugglingAgain on Aug 2, 2005 15:07:40 GMT -5
This afternoon I've been totally overwhelmed. I received the extensive questionnaire from my son's 3rd grade teacher to send to TX Children's Hospital. For instance, one form has 86 questions to be answered, Never, Sometimes and Almost Always. Sixteen were answered Sometimes and all the rest were answered Almost Always. My ds is lots different at school than I thought and way different than even at home!! Of course, I have no clue what any of it translates to the doctors, but I'm flabbergasted. From my layman's translation, I think he has huge Executive Function abnormalities, but I don't know what else. That probably means we're in for major school problems and that the IEP he has now will never suffice. I think I need a good cry...
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Post by milesofsmiles on Aug 2, 2005 15:16:50 GMT -5
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Post by mom2tj on Aug 2, 2005 15:43:35 GMT -5
I agree after yo've done crying  call the teacher and have a friendly conversation, most of our kids act very differently at school then they do at home. I've learned its always better to be on the same side or at least let the teachers think you suport them all the way.... p.s. dont panic wait for the dr.s to tell you what is going on. till then
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Post by StrugglingAgain on Aug 2, 2005 18:36:18 GMT -5
He's behaved so poorly this afternoon, I've not had time cry. Just at dinner.....it's chaos (every night). He doesn't even eat with his utensils. He eats like an animal with his hands and he knows better, it's just a way to get it started once again at dinner. I tell him to get out of the pool and dry off so he can eat, and he totally ignores me......this is soooo tiring. I can predict when he'll pay attention and when he won't most of the time. Oh yea, that's safe......he NEVER pays attention.
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SKay
Member Emeritus
Posts: 1,126
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Post by SKay on Aug 2, 2005 19:15:52 GMT -5
I hope everything works out for you. We begin evaluation of DS next week. I dread the process and the expense.
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