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Post by hopeful on Jul 8, 2004 8:41:34 GMT -5
Here we are again trying a new med. My 7yo son's doc believes now, without a doubt, my son is dealing with anxiety and probably not so much adhd. This is as a result of his reaction to medications + very close note taking/observations. This is a doctor that took forever to get into (he's mentioned in Dr. Amen's Book) and we've been with him since about January. My son has been on Buspar (it's helped) and a bit on imipramine (for the adhd).
We've dropped the imipramine, and started with a very small dose of clonazepam twice a day. My brother that suffers from anxiety also takes this med, and I believe it litterally saved his life. Another brother takes paxil, also for anxiety.
I am very comfortable with this adjusted diagnosis. It is true that the symtoms are very similar to each other. But I've always felt the anxiety is what caused the problems. When he's nervous (most of the time) he can not stop talking. He is extremely careful by nature (when he was a toddler, I thought he was carfull due to good parenting), I could go on and on.
I should be seeing results with this med pretty quickly once we get the dose right. I'll let you know how it goes. For the first time in a long time I'm feeling positive and optimistic. The buspar has helped tremendously, but I can tell it just wasn't enough, but it's been helping in the right direction.
Wish us luck!!
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Post by AnneM on Jul 8, 2004 8:52:58 GMT -5
GOOD LUCK hopeful .... ! I hope this new med does the trick and is helpful ... With your two brothers suffering from anxiety it certainly sounds like this is a likely scenario especially considering the way these things run in families eh?
Please keep us posted on how it goes ... GOOD LUCK!!
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Post by hopeful on Jul 8, 2004 15:34:05 GMT -5
I was so positive when I woke up and wrote the post this morning before my son got up. I know this has nothing to do with the new med coz I hadn't given it to him yet this morning.
He was beside himself this morning. He was so upsest, he made himself get sick. He told me all the things that were bothering him and I feel so helpless because there is not ONE THING I could do to help him except to hold him and love him and feel for him. I'm glad to say that he was better within the hour of taking his meds, but I just felt awful for him. I'm so glad his appointments today, but I was so worried that I called the doc for him to call me back before we see him this afternoon.
I let him go to camp today because the thought of not letting him go to camp upset him even more. He loves camp, but I'm afraid he will alienate himself from his new friends if he starts acting up. It's one of those times I have to let go, but really don't want to. I'm so worried I will get a phone call.
Now I have the cat to the vet, but it's just as well to keep my mind off of my son for a while.
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Post by rosyred45 on Jul 10, 2004 9:56:44 GMT -5
How's it going hopeful? any better?
I hope so (((((((((((hugs))))))))))))
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Post by hopeful on Jul 10, 2004 10:04:44 GMT -5
Thank you for the hugs, I really needed them. It's TERRIBLE. He had just the opposite effect. He was anything but calm. It was without a doubt the wrong med! He was extremely "everything", angry, volitile, crying, argh! I haven't slept.
Well I tried. This med saved my brother's life.
I'm really considering going to the Amen Clinic.
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Post by rosyred45 on Jul 10, 2004 18:17:21 GMT -5
You need to consider what ever means that you feel comfortable with. I don't say that to sound wishy woshy, because it sorta does, but if you have a family gene like that, you know what you will be dealing with. I hope that you find something before you pull your hair out. I have just started to think of my 2 as something with anxiety, but not severe enough to not function daily. Except for me who is about ready to kill the arguements about everything. Have you looked at the diet? We are based on Feingold and I can really say Mikey about bit it today because he was outside eating wild cherries  The salysitates (sp) get him so worked to the extreme it isn't funny. He gets nasty, oppositional, arguementative, not necissarily defiant-um impulsive, my way or hte highway, whiney, crying. You name it, he's it. We don't do supplements, as I have yet to figure out what I'm doing there, but with his diet modifications, he usually does pretty good. Just a thought more (((((((((((((((hugs))))))))))))) Kaiti |
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Post by hopeful on Jul 11, 2004 16:21:20 GMT -5
Thanks again for the suggestions, but diet was one of the first things we tried. I'm thankful that he has a good diet.
It's been a nightmare. I brought back the imipramine coz that me have been a huge contributing factor. Today seems back to normal, meaning regular anxious self.
Here's the kicker! When we were originally ramping up the imipramine, we saw no change. However, the last time we tried to stop it, he was also very angry/depressed, but it turned out he had just gotten a very severe ear/sinus infection that took months of antibiotics to clear up. We blamed the infection, that is until now.
I still don't think the clonazaban is right. However, the imipramine DOES seem to help. 3 days of H*LL seem to have mellowed. Let's hope we can string a few happy hours together in a row.
We see the doc on call on Tuesday. Don't know how I feel about that yet. I may just wait the 2.5 weeks for the regular doc to come back from vacation. We'll be out of town starting Friday. I'm just going to catch my breath and see how I feel tomorrow.
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Post by rosyred45 on Jul 12, 2004 6:18:34 GMT -5
Was the anitbiotic a contributing factor in any of his behavior? Did that respond negatively with the other medication that he was taking?
Like I said before, I don't know alot about meds, but I know that one anitbiotic my cousin was taking wouldn't allow her to be in the sun for fear of sun poisoning, she couldn't smoke, she had to watch her levels of Vitamin C, and a couple of other things that I can't remember right yet, but it was a nice list of can'ts.
I hope things have subsidded for now
Take Care
Kaiti
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Post by hopeful on Jul 13, 2004 8:36:42 GMT -5
I'm glad to say we went back on the impramine and everything is back to where it was. The good news is we know how well it works for him.
It was our assumption at the time it was a combo of everything: ear/sinus, anti-b's, and dropping the med. If it was so dramatic over a few days ago, I would have kept on assuming it. However, I've since changed my mind. The imipramine is here to stay. However, there are still anxiety issues to deal with. I need a break, as does my son, so were going to "live with what we know" for a few weeks before I try anything else. Hopefully he won't get teased to bad about his shirt sucking, etc.
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Post by AnneM on Jul 13, 2004 10:06:30 GMT -5
This is just a thought and probably not relevant ... but did your son have any "decongestant" meds whilst he had his ear infection?
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Post by hopeful on Jul 14, 2004 10:32:08 GMT -5
No he didn't use decongestants. All I can say is I'm glad I keep good notes. It was exactly the same as before, less the illness.
Now that he's stable, and once I get my courage up, I'll try adding the clonazapam back. I'll know immediately (45 min) if he truely does react to this med.
Again, it's another example of the more we know/learn, the more questions we have.
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