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Post by Honeysmom on Jul 6, 2004 22:36:07 GMT -5
We had our appt today for Honey's eval. It was so great, the Dr. was wonderful and I feel very lucky to have met her. She met with us for about 2 hours talking and playing. Previously I had sent in the paperwork for her to review so she knew what I was looking at.
After we talked she was amazed that he had "slipped through the cracks" like he did. She did dx him with PDD. She thinks he is more severe than I did, but she also can see that he is very bright. She said he was a good problem solver and very polite. I needed to hear that and I appriciated it.
Now we have to go through the ins paperwork, get him a waiver (I'm still confused about that), and then treatment can begin. She did recommend intensive in-home therapy so we are going to do the Lovus (sp) treatment tailored to him.
I probably should have been upset, but this is the best day of my life. I won!! I did what I had to do and now we are on the right track.
We did tell DH's family and they are mad. Serious denial, but that is their problem, not mine. For the first time ever I am not worried about his future. We have identified the problem, now we just have to work on it.
Thanks for all of your support as we worked on this, I couldn't have done it without all of you guys!!...Becky ;D
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Post by aimee30 on Jul 6, 2004 22:43:41 GMT -5
Yippee!! What great news Becky! I am so glad you finally have a dx. Congratulations! ;D
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Post by finnmom on Jul 6, 2004 23:32:37 GMT -5
Becky, great thing  You wouldn´t believe how pleased you can be of an dx, ha? But I know the feeling, it was such a relief to have a named problem that you can work with (Sorry to be so stupid, but PDD=pediatric  ) Good new´s finally Dont worry about the family, tehy´ll get it eventually, at least now you know what is the real deal with your child |
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Post by loveforeric on Jul 7, 2004 2:02:23 GMT -5
Becky; I am so happy that someone listened to you. Did she say what exactly honey has on the pervasive developmental disorder spectrum...? I hope you have agreat day, Christina |
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Post by rosyred45 on Jul 7, 2004 8:31:01 GMT -5
Great news Becky....finally have a finger on it. Bout time huh  What exactly do you have to do with the in home therepy? |
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Post by Linda on Jul 7, 2004 8:34:52 GMT -5
Finally.....now you can go forward!
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Post by Honeysmom on Jul 7, 2004 12:10:26 GMT -5
Marja, it is pervasive development disorder.
She put him at moderately autistic. That was more severe than I thought, but she said that by all outward appearences he seems normal and seems to be able to cope or hide things very well. She also said that many things that I thought were "normal," or just him are actually signs.
I also found out this morning that a Children's waiver is lsort of like a budget that needs to be worked out before treatment can begin. I also called the county and found out that there is no waiting list for this service. He is the only kid in the county in the process of being treated so he won't have to wait. That is really great b/c there are time and age limits to be eligible and not I don't have to worry about him not being eligible. If he was too old there is not way I'd be able to consider the at-home treatment b/c the cost is just too high. Actually, I am amazed by it.
So now I wait for more phone calls to get this ither garbage straighted out.
Becky
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Post by mom2tj on Jul 7, 2004 13:10:20 GMT -5
you must be releived Good for you , you can get help while he is young.....
this is the first time I hear of this what are the signs? what make this diff from autisim and of ADHD? does he have adhd along with this?
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Post by rosyred45 on Jul 7, 2004 13:13:18 GMT -5
Great Great Great, no list to wait for or anything. Can I ask, what kind of traits did she say she saw that you thought was just him? Just little quirks and such? Hopefully those phone calls and paperwork will all be done and you can get a move on |
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Post by Honeysmom on Jul 7, 2004 16:31:31 GMT -5
Mom2tj, The doc believes that he probably still does have ADHD, but as his therapy progresses it will be easier to see which behaviors can be controlled and which cannot. This is a site that his a list of the signs and symptoms of autism: www.childbrain.com/pdd.shtmlI don't know for sure, but I think the degree of severity from ADHD to autism is greater, and after you look at the symptoms lists you can see that some of the behaviors are just a little odd. Kaiti, she said just the way he talked to me with his persistantness and the tone he used struck her. She also said that his body/hand motions were what you'd expect from a child with autism. I still don't see what she means, but then again, I am used to him. She also noticed that when he did sit down he was allowed to touch me all that he wanted w/o any respect for my felings, but if I touched him he looked like he was in pain. Becky |
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Post by rosyred45 on Jul 7, 2004 16:55:49 GMT -5
I think I understand. Very, um, to the point and be done with it. Makes a statement and that's that can cut to the next conversation in a heartbeat. Like that?
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Post by savvymom1 on Jul 7, 2004 18:20:19 GMT -5
Becky, I am so happy that you had a good experience with the doctor and finally have a diagnosis! I know how you feel-- it's great to have some answers and a diagnosis to move forward with! Honey is lucky to have such a great mom on his side. Now you can get busy helping him with his specific needs. What a relief.
As you and I have discussed before, my dd has Asperger's Syndrome which is also in the autism spectrum. Every single child is different in their symptoms and characteristics. The more I learn and talk to other parents of these children, the more I see the differences and similarities.
Don't worry about the family members--they'll come around. You've most likely prepared yourself and read up on all of the autism spectrum possibilities, while this is probably pretty new information to them.
No one wants to admit their child, (nephew, grandchild, etc.) is not perfect. I promise, in time they will come around and be supportive. It took both sides of our family a while to get educated and understand Asperger's.
I am so happy that you have some answers at last!!!
Judy
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Post by Honeysmom on Jul 7, 2004 21:44:23 GMT -5
Thanks Judy!! I talked to my sister tonight for over an hour and she was so great to talk to. She asked all kinds of questions (most I didn't know the anwsers to) and even asked me if I was sad. I thought that was really nice of her b/c my MIL acted so terrible. Usually I wouldn't have even told my MIl, but DH has a cousin 4 months younger than Honey and he was dx'd the same way 3 months ago. She was going on and on about how "weird" the kid was and that his mom is weird so she caused him to "catch" it. I couldn't take her cutting the poor kid down anymore so I just blurted it out. More tact probably would've helped, but that is the way it goes. Kaiti, Honey is in control of the whole converstaion. Half the time he makes no sense at all, or if I ask a question, he'll respond with the line of a movie, but if he wants to do discuss it then he is the boss. Control is a big issue with him. I have no idea where he gets that from....  Actually, that is what gets me about the whole thing. This is the first time ever that I cannot have control over a situation with my kids. If they were sick I could take them to a doctor, I could give them medicine and make it better. Even when he got his ADHD/ODD dx, I had some control with using meds. This I can't control, can't predict, and can't fix for him. That bugs me. Fear of the unknown is scary. But, it won't kill us, so we'll make it. Becky |
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Post by Amsmom on Jul 8, 2004 6:42:36 GMT -5
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Post by AnneM on Jul 8, 2004 7:47:34 GMT -5
Becky ... I am soooo pleased to see this outcome .... This is excellent ....  |
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