Have to give up the meds - worst day

[mommy007]

Well, we did it again, the nuro put my DS on 20mgs of adderall Xr, he had previously been on 15mgs. The doc added 0.1mg of clonidine to hopefully counteract the side effects of the adderall XR. He is also taking clonizapem for night terrors.

The weekend seemed great, he was a bit itchy. I called the doc monday to report that.

Than the pricipal from the school called, my Ds was telling them about his imaginary friends the "ghosts" the good ones and bad ones. they were concerned enough to call me from work to come get him. My husband and I both went.

They brought in a lady who spoke to him and recommended a mental health evaluation. We talked to hm afterwards. he does know reality from fantasy, which the school was concerned he did not.

I'm so done trying meds, every time for 5 years now we have side effects, each one worse than the other. I'm sure this is the cause, the Neuro told us to stop the additional meds.

Now the school thinks my DS is crasy! I know he is not - We never had this issue before. My Ds had a great time telling them about his friends. I think he liked the audiance?

Anyway I am as down as they come, don't know how much more of this I can take. All I ever wanted was to find something to help him focus. He has just been diagnnosed with PANDAS. It effects him like ADHD. He even may have ADHD, the the meds have a bad effect.

I don't know where to turn anymore. We have done it all. Every doc, every med, combination meds etc.

He us 11 years old, 120lbs.

It is becoming a strain on the entire family. But the adverse reactions are the worse, this school wanted us to see somebody asap to have a "intake" mental health exam.

We are seeing the neuro on April 27th , they are going to try to reschedule him sooner.

support, just at the end of my rope.

[AustinsMom]

Sorry your son--and you--had to go through this. It's not fair when all of your best intentions keep coming back to bite you. I don't have anything to offer except support and to say hang in there. You are trying so hard to help him; you'll figure out what is best.

[shelli]

Sorry about your day. That is just awful. These meds can be very scary. I would wait and see what the neuroligist says before you totally give up on meds. I know it is frustrating, I have to keep a book of all the different meds and reactions she had because there is so many I can not remember which ones she has been on and what they did. Hang in there!
shelli

[Brenda]

(((((((mommy007)))))))) Hang in there .I know how hard it is.My daughter has tics and can't take stimulants.We've tried them all I think.Have you tried Strattera?Good luck!

[Dad2Brooke]

{{{{{{{{mommy007}}}}}}}}

It is hard when everything that you do to help, only seem to make things worse.

But don't give up. Your little boy needs you. Hopefully the neuro can help you both.

My thoughts and prayers are with your family.

[didi]

dad2brooke,
I think that was the nicest post I have ever read.
And even though they were ment for mommy007, I want to thank you for your very thoughtful words.
Didi

[Dad2Brooke]

Thank you didi, for your kind words. You really brightened my day! ;D

[lllex]

Hi Mommy007,

I'm so sorry about the problems you're having with your son.

I just wanted to let you know that you can find some additional support and treatment options in the natural alternatives section of this site. There are some incredible people there that have been sooooo helpful.

Hope things go better for you and your son,

Laura

[Linda]

Please keep in mind that you are a good mom and have been doing everything possible for your son.I wish you the very best and you have our support.

[Amsmom]

dear mommy007,
I'm so sorry that you are having such a rough time. Don't let the school get to you. Don't they know what an imagination is? I agree with you, once your ds got so much attention, I'm sure it only encouraged him to say more. I know how it feels to be so down. It really hurts. I also know the pain and frustration of trying meds for years with no good results. My son cannot take any of the stimulants. He is on Depakote for mood stabilization and Risperdal for aggression. It took 3 yrs to get to this combination and we still have many rough days.

Just know that we are all here for you any time. Please take care and keep us posted.
(((Hugs to you mommy007))))))

[dfp]

I'm so sorry you had a bad day.

My son had a med change last week and started hearing voices, so I know what you're going through. In my research there is evidence that in some kids, clonidine can cause secondary mania in children, so it might not have been the adderall (though my son can't tolerate it either), but the clonidine.

It does seem like this combination of meds isn't doing it. But I also agree with the other folks that there probably *is* something out there. But the horror of finding it. I feel for you.

And if you haven't gone over there before, the Natural Alternatives section *may* help somewhat. We are huge skeptics, but some natural interventions have had some incredible results with my son. We are SOOOO not out of the woods, (just read my posts from a couple of weeks ago), but some of those things *do* help some and are backed up by real research.

Anyway, I don't mean to overwhelm you more. I know about lower than low, and I'm thinking about you guys and sending lots of wishes for some peace and stability for you guys. (Not to mention more understanding school staff!)

dfp